Hard day today! I did get an update on Jeremiah today though no pictures and no travel date :( The lady is back and a friend that got first decree just before us got travel dates today so I am prayerful we will get ours tomorow. I was told that they have asked the person in Taiwan for our date but did not receive a reply yet. I will share the update I did recieve that was very hard for me to read. PLEASE keep Jeremiah in prayer. I am bawling as I type this to you. This is all update since January...
DATE REPORT RECEIVED | AGE | HEIGHT | WEIGHT | HEAD CIRC. | FORMULA/ DAY |
11/12/09 | 19 mo.
| 30.1 in 76.5 cm | 19 lbs 8.8 kg | 15.7 in 40 cm | 1000cc |
12/8/09 | 20 mo. | 29.7 in 75.5 cm | 21.1 lbs 9.6 kg | 15.7 in 40 cm | 1000cc |
1/10/10 | 21 mo. | 30.3 in 77 cm | 20.7 lbs 9.4 kg | 15.7 in 40 cm | 1000cc |
2/9/10 | 22 mo. | 30.3 in 77 cm | 20.3 lbs 9.3 kg | 15.7 in 40 cm | 35.5 ounces 1050cc |
3/29/10 | 23 mo. | No measurement info |
This confuses me because March 29th he turned 2 so would be 24 months. Sad I have no weight and height for him for his bday. But february shows a slight weight loss of 4 ounces so I worry that March may have as well. and head circumference again has not grown and height was the same from January.
February 11, 2010: He had blood test for the drug content in the blood at the pediatric neurology clinic at NCKU. The result is Valproic Acid: 44.52 which is slightly lower than usual. Doctor Huang suggested to dose to Depakine 200mg Bid 1cc and Baclofen 1 Ke Bid. The next follow up is scheduled on May 13, 2010.
He was hospitalized from February 16 201 to February 20, 2010 because he had bronchial pneumonia.
This sent me to tears. I had gotten word from a friend that picked up his son in Taiwan and saw Jeremiah that Jeremiah had been in the hospital and it so upset me that I did not know and was not with him. To know it was Pneumonia and he was there for 4 days with no mommy just tears my heart out :( I feel like we have so let him down in taking so long to fundraise thereby making it longer till we got to court :( I fear he is getting worse. :( each update sounds worse :( We also go this
* March 2010: His daily schedule is very irregular. (The doctor explained that it had to do with the unusual electron discharge in the brain). He would involuntarily laugh. When he hears familiar sound, he responds like he understand but he might not understand. He can laugh with sound or have his mouth wide open.
I am not sure at all what that means about the schedule irregular because of electron discharge in brain. I can't wait to take him MYSELF to the docs at Shriners and our Pediatrician and Neuro docs and find out more what they think and say.
I am so prayerful to get dates TOMOROW or sooner but as it is 5 am in Taiwan I doubt sooner will happen. Jeremiah needs to be home so bad. PLEASE pray for him and for our final almost $4000 we still need to raise!
Another thing bringing tears today is Noah's IEP meeting with the local school. He ages out of Early Steps and so the schools will come into the home for therapy. Noah currently receives 1 hour of Speech, 1 hour of OT and 1 hour of special instruction every week. The school is not going to give him as much. He will get 30 minutes a week of speech (half what he gets now which I think he needs more not less ;(, OT will come twice each 9 weeks. That is it, not every week, like twice every 9 weeks :( special instruction will happen for an hour a week and adaptive pe will be 30 minutes once a week. I dont know how OT will help sensory when they are not here and the lack of speech has me upset so I left the school in tears. I am reseraching how to homeschool speech and seeing if I can find a place our insurance will cover OT in addtion to what he gets. I committed to this little boy to do ALL I COULD to make sure he had the best shot in life. I will FIND someone who can help with this sesory stuff! Please keep Noah in prayer too.
And please pray for me, I can't stop crying as I type today and I just feel sooo overwhelmed, somewhat scared about finances and especially about how Jeremiah is doing, and now feel like I am in a way to get Noah what he needs. If I had money I would take Noah and jump in the car and drive to a hotel and just veg with Noah. I feel so I dont even know the word.
I KNOW God is able, I KNOW God knows the date we are going, I KNOW God will hold Jeremiah till we get there and I KNOW God knows how to get Noah's needs met. I NEED to REMEMBER all that! I am soo happy I got word today on Jeremiah, even if it is not doing good, I still want to know how he is. and I am very thankful the school will give us what they will. I hate to sound like an ungrateful compainer :( sorry guys.
Here are pics of my THREE KIDS! Since I have no new picture of Jeremiah I will post the one from January again.