To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!
Friday, March 4, 2011
My child
I am a parent of a child with special needs. My child is strong, therefore my child keeps me strong. My child is a fighter, therefore I continue to fight for my child. My child is my inspiration giving me the strength and the will to fight and do what I can for my child. I will NEVER give up!!
Tuesday, March 1, 2011
Awesome news
God is a God of miracles!! The first doctor, Dr. Edelman is back on service. We are being discharged!!!! He says we can work on feeding at home with out Pediatrician!!!
To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!
Monday, February 28, 2011
LOOK LOOK LOOK!!!!
Sunday, February 27, 2011
PRiCELESS
1 night in PICU $1000 + , a cafeteria meal $5 + each, rocking you baby that they couldn't get off life support ... PRICELESS!
More prayer needed, Ok so the baby in next room has RSV and the woman that helps in there has been playing with Noah alot and was just in OUR room visiting with me and I asked what was wring with their baby and she said RSV. I am freaking now!! Jeremiah is not fully protected because he only had 1 shot. Noah is not protected at all but won't be as serious for him if he got it. For Jeremiah it could be deadly. Please pray!!
Jeremiah had a pretty good night. Still off the vent and on oxygen! He is having apnea episodes so praying those away and trying to figure out what is up with that.
Please pray for me emotionally. Between all going on withJeremiah and how the whole family is dealing with it and all I am a disaster.
I am so very thankful to the LORD that Jeremiah is off that vent And doing well. Trying to just hold onto that and to him! He is just now dealing with all the surgery healin because the vent kept that throat irriatated the entire time.
Thank you for continual prayers!
To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!
Saturday, February 26, 2011
Rockin
Noah is doing really well considering. Going home atnoght with daddy and jei jei who are takin turns on sleeper sofa with him and having fun slumber parties!! Heehee he is spending lots of time with his daddy when Celeste is working and he can't be back in picu he cam come 30 minutes at a time and they are way generous with that as long as he is quiet and all. Please keep praying as the surgery healing begins now since the tube has irritated it all this time. Please pray breathing continues to improve and feeds go well as they increase and for healing and all.
Friday, February 25, 2011
Can't believe..
Can't believe I get to say this!!!!
He is OFF vent and breathing with 02!!! They pulled it at 8:30 and he is breathing!! God is awesome!!!!!!!!
He is OFF vent and breathing with 02!!! They pulled it at 8:30 and he is breathing!! God is awesome!!!!!!!!
To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!
Only my Jeremiah
Didn't really plan to put pics up on vent but how could I Not share miah smiling at me even on a ventilator! I would be pulling the tube out and he is smiling!!
He was smiling really big before I got the camera but you cam see s little smile here
For those following the nurse issue I did meet with nursing supervisor and miah was assigned a new night nurse last night. She is wonderful!! We had her back this summer a few times and she was one of our favs. There was physical evidence that his day nurse yesterday documented and was mad about to back up my story. His face was crusted over from drainage of nose that was not suctioned all night. Diaper drenched, bed dirty including blanket under head nasty with secretions , etc . And the monitor records will prove his huge desat at the time I said from he roughly turning him and jostling the tube. Also there is leakage around the tube now from jostling. Just know other than her his care has been impeccable and now she is not allowed to be his nurse. We have a new dr. One who travels all over to teach doctors how to care for very sick babies . He is one of the two top guys in the country!! How cool God brought him to Jeremiah!!'
Praying he can get him off the vent and doing well!!
He was smiling really big before I got the camera but you cam see s little smile here
For those following the nurse issue I did meet with nursing supervisor and miah was assigned a new night nurse last night. She is wonderful!! We had her back this summer a few times and she was one of our favs. There was physical evidence that his day nurse yesterday documented and was mad about to back up my story. His face was crusted over from drainage of nose that was not suctioned all night. Diaper drenched, bed dirty including blanket under head nasty with secretions , etc . And the monitor records will prove his huge desat at the time I said from he roughly turning him and jostling the tube. Also there is leakage around the tube now from jostling. Just know other than her his care has been impeccable and now she is not allowed to be his nurse. We have a new dr. One who travels all over to teach doctors how to care for very sick babies . He is one of the two top guys in the country!! How cool God brought him to Jeremiah!!'
Praying he can get him off the vent and doing well!!
To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!
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The FIRST Picture we EVER saw!
Noah WesLee 5 months old
The First Picture we ever saw of:
Jeremiah Harold Sisemore ~1 year
