So, how long are you gonna do this? and playdate.

Today we went to my friend Margaret's house for a much needed playdate!  For me and for the boys! :)  Thought I would share about the play date :) First of all NOAH got his first bloody nose from injury! He was pushing Joseph in the swing and would not stand back far enough like we said and whack in the nose and to the ground he went. He cried but got up and walked to me so not too bad. It did bleed but not alot. Of course I had to take a picture first :)

This is after I zoomed in you can see Noah on the ground after he got knocked down and bloody nose.

He learned to come down carpeted stairs on his hiney. I did NOT LIKE this part at all and was scared to death but he did well with it really. I did NOT get a picture of that! I was too nervous EVERY time he went down. Normally when we go the "choo choo's are downstairs I guess because so many kids are there but today they were upstairs since it was just us coming. He would not stay up there long without me so it became a constant up and down and I thought I would go nuts.


We then went out in the back yard. they have a BIG playset out there and he loved it. It has levels to climb and a high slide. Made me very nervous but other than falling once (thank God it has the landings and walls. he fell back and I saw it but could not get to him but he just fell back against the wall and landed on landing. MY HEART leaped through my throat. Margaret was like he is fine. I know boys will be boys but man my heart... he cried but then recouped pretty quick and did ok. VERY NERVOUS time for me. But even with all that he had a blast :) and I had a great time with my dear friend! :)

then inside the put all the big couch cushions on the floor and would roll off couch onto cushions and laugh and laugh! it was cute though I felt bad because it was not something she normally allowed. 


Margaret made Mac and cheese , animal crackers, and baby organges for lunch. Noah did not eat the orange but ate all the rest up really good.  I am not sure he even tasted the orange.  I WISH I could get him to eat fruit, to even taste it but alot of times he won't.  We visited a lot and it was so nice :)


They had ice pops out on the patio.

Jeremiah did NOT like the ice pop too much :) lol

what a face he made!  Not sure if it was the flavor or color. 

and was kinda fussy a couple times outside though did like the wind.

He did the arm thing.  I am not sure what this is, but he will lift his arms all the way up slowly and then all the way back down slowly.  Sometimes he is asleep and sometimes awake when he does it.


after inside again after she put her youngest down for a nap and then she has one of those hanging bouncy seat things I want for Jeremiah so she helped me put him in it and try it out ;)  I do not even know for sure what you call it but I SOOO want one :)

The picture doesn't show it but he really liked it :) later he was actually smiling! Margaret said if we got one  we could put a bobby behind him to help him hold his head up :)  He can hold it up good but when I put him in things like this and the bumbo he leans back.  Not sure why. 

Noah had a FIRST for him.  He ran across the grass BAREFOOT!  He normally will not take his shoes off even in the house without a fight and has NEVER been willing to run in the grass without shoes.  It did take a few minutes to get him to be willing to go off the patio (which I was floored Mrs. Margaret got him to take shoes off to begin with).  It started with her telling him to take them off to grip the stairs with his toes coming down on hiney and they stayed off awhile. 

It was a wonderful morning even though I almost had apperplexy with the stairs and high play place :)

Also thought I would show you this picture of Noah throwing a fit to get out of his car seat the other day!  It shows what a good seat it is that he can't get out though he is not safe like this.  The van was parked waiting on daddy in  the first of 3 pharmacies trying to get meds for Jeremiah.

see how he has got the thing that goes over his chest down to his belly and arms out but can't get any further.  He is totally mad at this point! I was holding Jeremiah in the front seat and feeding him bollus in his tube when it started and was trying to tell him I would get him out in a bit.  It was frustrating because he should be able to sit in his seat and not have to get out just because we are parked but he wants out if we are not moving.  After I got done feeding I took this picture using my phone and the mirror.  I can't beleive it worked and was done one handed! lol

So afer our playdate and lunch this morning I had to go to my personal doctor.   She is a good doctor and always been sweet and all, though hard to get an appoitment.  You have to wait days sometimes, and that is so hard if you are sick or having alot of pain or something.  Anway this was a followup to some tests she did awhile back.  So we are talking and all and I have both  boys with me of course so she is aksing how they are both doing and then she says to me, "So how long are you gonna continue to do it?" I'm like what and she says keep him. WHAT!! I am still in shock by the question !!  I have told several on facebook and text and they were like livid for me and all and were like I know you are so mad.  I did not get mad, more sad really.  She is Asian as well.  I just think she thinks it is just too much to do to take care of him.  I did not ask her what she would have me do but I bet she was thinking putting him somewhere which I could NEVER do.  I adopted him because I loved him an dhe was a gift to me from GOD!  She was shocked when my responce was forever of course!  She was like , "Really??"   I have been told I should get a new doctor but I will continue to see her because as she takes care of me she will see LOVE make a difference and that Jeremiah's life has value.  She is a good doctor and I feel comfortable with her but she has never seemed to understand my desire to adopt the boys.  Even when it was just Noah :)  and she has seen how he has grown and changed and can now talk and everything.  I look at my frogie boy and I just can't fathom how anyone could ask how long am I gonna care for him.  I wonder would she ask me that had I givin birth to him from my body.  She might have.  I look into his face and I am in love.   Yes he does not always respond and give me smiles, yes he has alot of needs I have to tend too, yes I get soo tired especially when he is awake all night long, but he is my son and he is worth every ounce of energy I have. 

 

We went to the Neurologist yesterday and I really dislike that man more each time I go.  He seems to contradict himself every time we go.  Yesterday he was very gloom again and just talked about only enough to barely sustain life at THIS point.  He was saying he has NO BRAIN.  but then later he said someting about he thinks its you touching him.  if he has no brain how does he think?  for that matter how does he eat from a spoon, how does he smile, and laugh at times, how does he roll over the few times he has, how does he TRY to roll.  How does he appear to scoot to me.  How is that he can be crying and I pick him up and sing to him and hold him and he calms down, and then I put him down and he starts back.  to me that says he KNOWS me and WANTS to be help.  even if he doesn't know me, he KNOWS he is being help.  I am beginning ot think doctors really don't know anything.  So much of me wishes I could go to some really big place with great docs and hospitals and just see what they thought about all this with Jeremiah.  This Neuro will say in one breath he is doing good and in the next that he has no brain and it gonna have all these problems and he is barely sustaining life.  I am so thrilled he is doing as good as he is.  To look at him you would not thing the gloom and doom they talk about.

My freind I spent the day with whose sister is special needs is so encouraging to me :)  She was not suppose to live as long as she has, she is 28!  I pray they day comes that I am blogging about Jeremiah's 28th birthday! :)  Can you imagine a blog over 30 years old!  I LOVE IT :) 

I have not been getting as many comments and it make sme sad and wonder if anyone cares anymore, if anyone is following along.  But really this blog will be here to be a reminder to me of all God has done in our lives, and in the comments a reminder of all the amazing people God has brought in along the journey :)  and someday for Noah and I pray Jeremiah to read and know all about the journey to get them and the life with them :)

Lastly I ask those that are still reading along to PLEASE keep our family in prayer.  I have some unspoken requests but they are very important for us.  It is not anything health related so please don't worry but the need for prayer is great :)

thanks everyone, I send you blessings and kisses in th wind! :)