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Friday, April 29, 2011
Prognosis None :(
for those who do not follow my facebook and have not heard, our Neurologist visit did NOT go well. The Neuro says that Jeremiah's prognosis has not changed and the MRI shows the same. He says my baby is going to die. He does not know when but that he is going to die. I have been bawling and am angry at myself for allowing a wordly doctor to sway me, but after the MRI and teh pediatrician being so hopeful and the radiology report showing brain where there had been no brain I just knew that Jeremiah's prognosis would not be critical anymore, well according to the Neuro the MRI did not show brain, it was fluid showing up white on the MRI and was mistaken for brain. I am CLINGING to the fact that I KNOW GOD IS ABLE. I am trying to dry the tears and TRUST and BELIEVE and also be accepting that GOD IS IN CONTROL. But at the same time I do NOT want to loose my baby. I know HIS ways are not mind and I have to trust HIM. I am asking for prayer from anyone who is willing and please spread the word to eaveryone you know to pray. I want to take 2 or more to a new worldwide level! PLEASE STORM HEAVEN for my sweet Jeremiah! Its funny after the 2 miraculous therapy improvements this week we get this news that there is no hope. I am clinging onto to God and reminding myself there is ALWAYS HOPE! PLEASE share Jeremiah's button on the sidebar on your blogs and share the blog or just share his name and the need! You can also share his picture! This was taken this morning after a rough rough night of him crying almost all night but joy sure came in the morning!
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The FIRST Picture we EVER saw!
Noah WesLee 5 months old
The First Picture we ever saw of:
Jeremiah Harold Sisemore ~1 year
11 comments:
Oh, Tammy and Bobby. I am so sorry to hear how the neuro visit went. You know your child best, and certainly have a large number of prayer chains going on for Jeremiah and your entire family. All of you will remain in our hearts and prayers.
I'm so sorry to hear this. Am thinking of you guys every day. J looks SO happy.
I am so sorry, and will be praying for all of you!
Holly Arnold
Tami; I'm so sorry the dr was so blunt. What I've tried to remind myself over the years when I've been given news like that, is that even if a dr says it, it doesn't make it true or guarantee that it will happen. Keep clinging to God's hands. Know that the neuro likely hasn't seen many children with hydran and that he probably doesn't know the tremendous power of a loving stimulating home. He probably has just read the text books.
My heart breaks for you. I can only imagine how hard it must have been to hear those words, especially on the heels of so much good progress. I really have to think that something good is going on up in Jeremiah's head, regardless of whatever the doctor might have said. I am still holding onto hope and like you, believing that God is able to do great things.
Only God knows the number of our days! I believe precious Jeremiah WILL live as long as God has planned him to! :o) We must enjoy each day because we can go at any time. I lost my healthy 28 year old daughter to a car accident 7 years ago. Jeremiah looks incredibly happy to me!! (((HUGS)))
Tami~
Oh sweetie, I am so sorry your doctor came at you like that. I came here to write you back from your comment on my blog, and read your latest post. The instant I read it, I knew I was meant to be here at this particular moment.
I'm sure you have heard the quote, "Science only goes so far, and then comes GOD." You know, as well as I do, that this is so TRUE.
After spending 3 months in the hospital with Aviana, and then all of her Kaiser appointments thereafter, I know one thing FOR SURE....the doctors saved her life initially, and after that have been good for almost nothing!!!
I am sorry to be so blunt, but it is honestly the way I feel. I feel they almost get off in some way by tearing another down.
After looking at pictures of your baby boy, I surely don't think he is going ANYWHERE, anytime soon ;o)))
There are two children I have met through The Institute that have half of a brain, these 2 are more able bodied than most I know with more brains.
We use such an insanely tiny portion of our brain, and so even if there is barely any to work with, we are good to go.
After going through all of this, I don't care what negative things the doctors tell me, because I know, for myself, that I can help her all I can,and no matter the outcome, all we need is love. And she is surrounded in more than she would ever have been had the accident not occurred. No doctor, or anyone else can tell me otherwise.
I haven't barely been able to look through your blog, and from what I have seen, your boy is miles ahead!!!!!
Stay strong my dear!! I know it is SO hard to hear, but every time they try to take me down, I look at them, and think....you don't know, it's the brain, only God knows. That pretty much dispels anything they have to say.
So, I came here to tell you about the patterning table. I got it on Ebay for about $65 dollars. If you type in Best Massage, it will come up, and then you can pick your color ;o)
I will help you anyway I can, just let me know what you are interested in that we do. My e-mail address is forthehodders@yahoo.com
Thinking of you sweetie, and will be keeping all of you close in thought and prayer!!!
Love,
Jen
Aviana's Mom
I meant to say too, when the neuro looks at an MRI...all he/she is seeing is structure, not FUNCTION. ;o)))
Oh Tammy, I am crying for you and everything you all have been through. Please know that we are praying praying praying. The doctor is seeing what he wants to see. He doesn't want to see brain, and he has to come up with something that it could be. Have you thought of getting a 2nd opinion and having a fresh doctor look at with no preconceived notions? I'd see if you could get a 2nd opinion from a doctor who doesn't know what the diagnosis is and see what he comes up with. Let him look at the MRI, do some tests, bloodwork etc and see what his diagnosis is. We are praying for you all.
Sending hugs & prayers your way! Sorry that the neuro's report wasn't good. I will be praying for Jeremiah. Stay strong!
Tami~
I am praying for peace for your heart today. You know your HOPE lies in the Lord only....He makes no mistakes and never does anything wrong. Hold on to the HOPE of that truth! We are praying hard and have your button! Big hugs through this message!
Jo Gooden
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