Wordless Wednesday....

Update and a day of tears

Hard day today!  I did get an update on Jeremiah today though no pictures and no travel date :(  The lady is back and a friend that got first decree just before us got travel dates today so I am prayerful we will get ours tomorow.  I was told that they have asked the person in Taiwan for our date but did not receive a reply yet.  I will share the update I did recieve that was very hard for me to read.  PLEASE keep Jeremiah in prayer.  I am bawling as I type this to you.  This is all update since January...

DATE REPORT RECEIVED	AGE	HEIGHT	WEIGHT	HEAD CIRC.	FORMULA/ DAY
11/12/09	19 mo.	30.1 in 76.5 cm	19 lbs 8.8 kg	15.7 in 40 cm	1000cc
12/8/09	20 mo.	29.7 in 75.5 cm	21.1 lbs 9.6 kg	15.7 in 40 cm	1000cc
1/10/10	21 mo.	30.3 in 77 cm	20.7 lbs 9.4 kg	15.7 in 40 cm	1000cc
2/9/10	22 mo.	30.3 in 77 cm	20.3 lbs 9.3 kg	15.7 in 40 cm	35.5 ounces 1050cc
3/29/10	23 mo.	No measurement info

This confuses me because March 29th he turned 2 so would be 24 months.  Sad I have no weight and height for him for his bday.  But february shows a slight weight loss of 4 ounces so I worry that March may have as well.  and head circumference again has not grown and height was the same from January.

February 11, 2010: He had blood test for the drug content in the blood at the pediatric neurology clinic at NCKU.  The result is Valproic Acid: 44.52 which is slightly lower than usual. Doctor Huang suggested to dose to Depakine 200mg Bid 1cc and Baclofen 1 Ke Bid. The next follow up is scheduled  on May 13, 2010.

He was hospitalized from February 16 201 to February 20, 2010 because he had bronchial pneumonia.


This sent me to tears.  I had gotten word from a friend that picked up his son in Taiwan and saw Jeremiah that Jeremiah had been in the hospital and it so upset me that I did not know and was not with him.  To know it was Pneumonia and he was there for 4 days with no mommy just tears my heart out :(  I feel like we have so let him down in taking so long to fundraise thereby making it longer till we got to court :(  I fear he is getting worse. :(  each update sounds worse :( We also go this

* March 2010: His daily schedule is very irregular. (The doctor explained that it had to do with the unusual electron discharge in the brain). He would involuntarily laugh. When he hears familiar sound, he responds like he understand but he might not understand.  He can laugh with sound or have his mouth wide open.

I am not sure at all what that means about the schedule irregular because of electron discharge in brain.  I can't wait to take him MYSELF to the docs at Shriners and our Pediatrician and Neuro docs and find out more what they think and say.

I am so prayerful to get dates TOMOROW or sooner but as it is 5 am in Taiwan I doubt sooner will happen. Jeremiah needs to be home so bad.  PLEASE pray for him and for our final almost $4000 we still need to raise!

Another thing bringing tears today is Noah's IEP meeting with the local school.  He ages out of Early Steps and so the schools will come into the home for therapy.  Noah currently receives 1 hour of Speech, 1 hour of OT and 1 hour of special instruction every week.  The school is not going to give him as much.  He will get 30 minutes a week of speech (half what he gets now which I think he needs more not less ;(, OT will come twice each 9 weeks.  That is it, not every week, like twice every 9 weeks :(  special instruction will happen for an hour a week and adaptive pe will be 30 minutes once a week.  I dont know how OT will help sensory when they are not here and the lack of speech has me upset so I left the school in tears.  I am reseraching how to homeschool speech and seeing if I can find a place our insurance will cover OT in addtion to what he gets.  I committed to this little boy to do ALL I COULD to make sure he had the best shot in life.  I will FIND someone who can help with this sesory stuff!  Please keep Noah in prayer too.

And please pray for me, I can't stop crying as I type today and I just feel sooo overwhelmed, somewhat scared about finances and especially about how Jeremiah is doing, and now feel like I am in a way to get Noah what he needs.  If I had money I would take Noah and jump in the car and drive to a hotel and just veg with Noah.  I feel so I dont even know the word.

I KNOW God is able, I KNOW God knows the date we are going, I KNOW God will hold Jeremiah till we get there and I KNOW God knows how to get Noah's needs met.  I NEED to REMEMBER all that! I am soo happy I got word today on Jeremiah, even if it is not doing good, I still want to know how he is.  and I am very thankful the school will give us what they will.  I hate to sound like an ungrateful compainer :(  sorry guys.

Here are pics of my THREE KIDS!  Since I have no new picture of Jeremiah I will post the one from January again.

Easter 2010 and other Happenings!

Easter Egg Hunt 2010

Baby Girl and Panda Boy Easter 2010

Plate Sale Fun with Panda Boy!

Last week Bobby and Celeste traveled to Dallas for the viewing of the founder of CFNI!  Celeste went to CFNI for one year and had to come home because of loss of funding.  Being a Bible college federal funding is not an option.  Celeste is planning to go back after she works awhile as a phlebotomist (which she graduates from school May 14th) and saves money and buys a car :)  Anyway, while they were gone to Dallas for this Noah and I cooked for the plate sale the next day! This is Noah helping me bake the dessert :)

April Fools Day around here was very very special!  My dear friend Shonette Came home from Ukraine with her beautiful 4 year old daughter AnnaKae they just adopted :)  Above are some pics of Noah and our sign and waiting in the airport!  He ended up out of the stroller!  I am in trouble when we travel, he HATES the stroller unless it is moving!  ugggh

Here are some beautiful pics from the airport :)

I wanted to show yall some of the things available at Nanny Jo's Boutique! She is doing a fundraiser for Jeremiah this week through the 9th.  

You are invited to my fundraiser at
Nanny Jo's Boutique
www.nannyjosboutique.com
Appliqued Clothing, Personalized Gifts
& More!

Hosted by:
Tami Sisemore

You will receive a 10% discount as a guest and help raise money for Jeremiah
when you shop Apr 2-Apr 9, 2010.


Each eParty guest will receive a 10% discount for the dates above. Just enter the code below for your discount. All you have to do is click and shop! It couldn't be easier. Everything you purchase will be sent directly to you! A portion of total party sales will be donated to Jeremiah. The earning chart (excluding shipping charges) is as follows:

$1.00-$300.00 total sales=10% Earnings
$300.01-$500.00 total sales=15% Earnings
$500.01 & Up total sales=20% Earnings


Nanny Jo's Boutique has appliqued dresses, jon jons and tees, as well as personalized gifts and cute hairbows!


CODE: 10JER4

PLEASE pray we get some news from Taiwan SOON!  We have had no new pics, or updates since January.  And we are still awaiting our exact travel dates!  PLEASE pray it comes soon. I have been told by someone else who spoke with our agency that the person in Taiwan who schedules AIT and pickup and all will be back from vacation Tuesday.  PRAYING that means news for us all!

Please look!

HE IS ALIVE!  PLEASE ENJOY some videos of some songs special to me.  Even if you do not share my faith, please take a few minutes to watch in honor of Easter!  Happy Easter and Happy Ressurection Sunday to you all!

Do you Know?

 Do you know?

Do you know how much I already love you, how I look at your picture and long to hold you, long to kiss your sweet face and run my fingers through your beautiful hair?

Do you know how I think of you in everything I do wondering what you are doing, if you are safe, how you are feeling, if someone is comforting you when you cry?

Do you know that God put you in my heart and I already love you as if you were growing in my tummy, how I hate the idea of you learning and growing without me?

Do you know how I ache for pictures and word about you?  How I can fall more and more in love with each picture, and how I study EVERY detail of them?

Do you know how much I worry about your health, your muscles, your nutrition and long for the day that I can take you to doctors, therapist, and make you the healthiest foods just for you?

Do you know you have a sister and brother that are waiting for you to come play with them, a daddy that is waiting to tickle your toes and kiss your forehead and teach you to play ball?

Do you know how many people are praying for you each day,you are special and loved?

Do you know how hard each holiday is with you across the ocean and how I long for the day to spend them with you HOME?

Do you know how hard we are working to bring you home,that God loves you and will be with you no matter what and that he is bringing us to you?

Do you know?

Cute kids clothes and more :)

You are invited to my fundraiser at
Nanny Jo's Boutique
www.nannyjosboutique.com
Appliqued Clothing, Personalized Gifts
& More!

Hosted by:
Tami Sisemore

You will receive a 10% discount as a guest and help raise money for Jeremiah
when you shop Apr 2-Feb 9, 2010.


Each eParty guest will receive a 10% discount for the dates above. Just enter the code below for your discount. All you have to do is click and shop! It couldn't be easier. Everything you purchase will be sent directly to you! A portion of total party sales will be donated to Jeremiah. The earning chart (excluding shipping charges) is as follows:

$1.00-$300.00 total sales=10% Earnings
$300.01-$500.00 total sales=15% Earnings
$500.01 & Up total sales=20% Earnings


Nanny Jo's Boutique has appliqued dresses, jon jons and tees, as well as personalized gifts and cute hairbows!
HERE IS THE LINK!

CODE: 10JER4