Pictorial update :)

Thought I would post a bunch of pics as a kinda update on life the last couple months.  :)  my laptop that was sent to me to use till I could afford to fix the power port in my dell is now dead :(  so I only have phone except for borrowing a lap top .  hope you enjoy pics :)

look how he is holding self up :)

Jeremiah ready for Church.  Any old times recognize the outfit Jeremiah is wearing????

Celeste and her sweet boyfriend Dallas :)  We had him over for a night of Pizza and games!  The catch, I made THEM make the homemade pizza's :)  I think they had fun though! :) 

happy baby

after watching Jeremiah at Hippotherapy for 4 donated sessions they let Noah have a turn to ride Paso on the last session. 

Miss Lisa our PT and Hippotherapist!

new braces :)  Can't believe how much he has grown :)

getting new AFO braces, see Noah's arm "helping" :)

nice AFO man puttin on new afo's Noah assisting! 

Happy St. Patrick's day :)

playin ball :)

holdin up good! :)

rare photos of Noah and Celeste SMILING.  They BOTH hate the camera and I can barely get pics!  Lucked out this day they were playin to much to care!

zerbert time!

had these made on ebay for Miah's party today :)  They wrap around a Hershey's minature! :) 

Happy Chinese New Year!

Stir Fry!

so happy this day :)

Jeremiah is wearing the outfit Noah wore his first Chinese New year.  Noah is 'fixin' it.  lol

at therapy.  messy play in pudding!  He was not thrilled but did it!

beautiful

ONLY MY BABY would SMILE while on the vent!  His T and A ended up being WAY more dangerous and complicated than anyone thought.  when tried to take of the vent 2 days after surgery he crashed and we spent a few VERY ROCKY days of him not breathing and the vent issues.  finally a week after they got him off!  THANK YOU GOD for ANOTHER JEREMIAH MIRACLE! This was right before he came off!  He was like I AM READY :)

Day before surgery.  LOOK at the grip. wonder if he knew what was comin :(

sleeping panda boy!

ponies

Jeremiah's bday is comin the 29th of this month and so we are havin a bday party on satruday the 26th.  Jeremaih soo responds to horses and ponies so we are movin heaven and earth to give him a pony party!  See the invitation!  THANK TO MY AMAZING FRIEND TIFF!!!!  I made the picture before my laptop died :(  and Tiff took it from there!  the location and all are blocked out but if you are a friend and want to come let me know and I will surely let ya know how :) 

My child

I am a parent of a child with special needs. My child is strong, therefore my child keeps me strong. My child is a fighter, therefore I continue to fight for my child. My child is my inspiration giving me the strength and the will to fight and do what I can for my child. I will NEVER give up!!

To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!

Awesome news

God is a God of miracles!! The first doctor, Dr. Edelman is back on service. We are being discharged!!!! He says we can work on feeding at home with out Pediatrician!!!

To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!

LOOK LOOK LOOK!!!!

LOOK LOOK LOOK!! We are breathing room air and holding our o2 sat at 97!!!!!!! Pray he keeps it up please and that he tolerates trying to go back up to normal feeds!! Please pray he does well today when the therapist come in to work with him and keeps his Sats up. Please pray if the retching episodes are gonna come back they come back while he is here and nurses can are it!!! Thanks for all the prayers through all of this and please keep them coming!

PRiCELESS

For Noah lovers a picture that was just too cute!!

1 night in PICU $1000 + , a cafeteria meal $5 + each, rocking you baby that they couldn't get off life support ... PRICELESS!

More prayer needed, Ok so the baby in next room has RSV and the woman that helps in there has been playing with Noah alot and was just in OUR room visiting with me and I asked what was wring with their baby and she said RSV. I am freaking now!! Jeremiah is not fully protected because he only had 1 shot. Noah is not protected at all but won't be as serious for him if he got it. For Jeremiah it could be deadly. Please pray!!

Jeremiah had a pretty good night. Still off the vent and on oxygen! He is having apnea episodes so praying those away and trying to figure out what is up with that.

Please pray for me emotionally. Between all going on withJeremiah and how the whole family is dealing with it and all I am a disaster.

I am so very thankful to the LORD that Jeremiah is off that vent And doing well. Trying to just hold onto that and to him! He is just now dealing with all the surgery healin because the vent kept that throat irriatated the entire time.

Thank you for continual prayers!

To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!

Rockin

So Jeremiah has been off the vent now for 31 hours and is breathing well!! He is on oxygen but they are trying to wean him down. Here is a picture of us rocking when they finally let me hold him 12 plus hours after extubation. He is runnin feverand feelin yucky.

Noah is doing really well considering. Going home atnoght with daddy and jei jei who are takin turns on sleeper sofa with him and having fun slumber parties!! Heehee he is spending lots of time with his daddy when Celeste is working and he can't be back in picu he cam come 30 minutes at a time and they are way generous with that as long as he is quiet and all. Please keep praying as the surgery healing begins now since the tube has irritated it all this time. Please pray breathing continues to improve and feeds go well as they increase and for healing and all.