THIS was what I made on his actual 2nd birthday while he was in Taiwan :) The big picture was the most recent I had at the time (from January though it was march 29th) I took that same program and made one for now below :) I hope you will open it. It is not long but has some cute pics and such and some you have never seen :) I am having such fun with the disk of pics from SLC that I didnt get to really spend alot of time with going straight to ICU. I am so praying to someday print EVERY picture on both the boys CD's and put them in albums! :) I have that as TOPS on my Christmas list though not sure what is going on for Christmas but I can still wish! LOL
|This free scrapbooking design made with Smilebox|
Jeremiah my sweet frogie boy! I am in awe of God that you are even here with us and for the incredible blessing you are to me! You amaze me constantly by the things you do especially when the Doctor has such a bad prognosis for you and seems to believe you won't do anything. You are smiling and laughing more and more and it sure seems like to me at times you are doing it because you are happy and loved :) Sometimes I will talk to you and you coo back at me just like you were talking :) Your tight muscles are still giving us fits but at times you are getitng looser. Mommy is frustrated because she feels you are tighter than you were when we picked you up and the American docs changed your level of Balcofen and mommy thinks you might need more or something different. You KNOW when you are being held and that is amazing to me. There are days lately where you are happy NOWHERE except my arms! I want to tell the docs, SEE! HE KNOWS ME! I just know in my heart you do. At times I will start to talk in a room to someone and you willl start smiling and kicking your legs! :) Makes my heart swell all over my body! :) You do NOT like tummy time and at times will flip over onto your back to get out of it :) so cute and frustrating :) heehee But amazing that you can do it even some times. You love the stander at therapy and tolerate it amazingly well! You have been in the gait trainer and brought tears to mommy's eyes! I so pray so many things for you my sweet boy and I hope you will do them all, but most of all I pray you will be happy and FEEL our love. I know in my mind what that the docs say your chances of survival are none, but my mamma's heart so can't grasp onto that and I CHOOSE to have FAITH that you will grow up. I find myself thinking HOW am I gonna do this or that when Jeremiah is older and BIGGER! lol I can't wait to have to figure it all out my sweet amazing frogie. Every second of every day with you is a blessing. I promised the Lord in that hospital room that I would do all I could to give you the best life possible! I am TRYING little man. SO HARD. I am so thankful God allowed you to live and get out of ICU and come home with us. You so stretch me and my abilities and I so love it :) My heart just swells with pride and amazement at you each day. Your big brother adores you and tries so hard to include you in everything! It is hard for him sometimes to understand that you right now can't do all the things and can't eat all the things he does! I am thrilled he loves you and that you respond so well to him :) Your big sister calls you her lovey! And love you she does. I KNOW her as a young woman of faith and she prays for you daily little frogie and what a blessing for you that she does :) Your daddy love you sweet boy. He will sing to you in such a way that tears literaly spring to my eyes. You have touched all our lives in such an amazing way :) WE LOVE YOU! :)
Took this just a few minutes ago :) He got tickeled about something! :) lol I had worried when he had these times that he might be having laughing seizures but his eyes are not fixed and they move around when he does it. The Neuro said he would have emotional unstability because of only having a brain stem so he thinks that is why he does that. But at times I KNOW he is laughing and cooing at us :) But here he is in his own world finding something funny :)
Please keep me in prayer tonight and tomorow. I have to have a CT scan tomorow and have to drink a bunch of yucky stuff tonight and tomorow and have an amazingly BAD gag reflex so I am so worried. Also, PLEASE pray for Bobby to do well alone with Jeremiah and Noah while I am in getting the scan done and PLEASE pray for me not to worry myself sick about my babies!