Wonderful gift from our friends the krasinskis (William and Judy's ) family in PA!!! Such a blessing

Bye bye PICU , Hello PEDS!!! We are in peds!!! Room 515!!

Dr. Eddlemans exact words "I think we are nearing the end of this" and the nurse said " you are going back upstairs today"!!! So looks like if all gies well we are graduating from PICU back to peds!!!!

And I thought I knew what hard was...

I thought 14 and half months of fundraising was hard! Especially so soon after 10 and half months of fundraising for Noah! But I now know those times were so easy in comparison to this time in our life. We are on day 21 of the hospital and day 18 of PICU with my sweet frogie boy! Coming straight home from Taiwan and watching your new son fight for his life over and over, now THAT is hard!!! I don't think anyone envisions this happening and I have been through so many emotions and thoughts of what did I do to make this happen, did something happen on planes. Why why why! The docs say this sepsis and pneumonia were underlying for awhile but why didn't it show up and thank God it didn't happen on plane or right before we arrived and keep us from getting him! All along  during the journey and wait I kept saying I pray we learned what God had for us to learn in the waiting and now I say the same thing! Let me learn Lord! There is so much about this that is hard, watching doctors and Nurses literally run around scared
for your baby's life, watching the vitals crash, choosing between your critically ill new baby and your 3 year old whose whole world has changed and now he can't be with mommy every minute. It tore my heart in two having to leave Noah in the waiting room to be in here with Jeremiah and again having to leave Jeremiah at night with Bobby to go to a screaming  Noah in the waiting room!  Watching my daughter try to help Noah be ok without me and how hard that is for her and now watching her upset that Noah now prefers her to me and will cry for her. It kills her and me and Bobby cuz he wants Noah to want him. There is so much more I could share but you understand I think! A few have said they feel so sorry for me that I am going through this and that after all we went through to get Jeremiah we might loose him. Don't feel sorry for us!! One hour with that amazing baby made every second of it all worth it! He so blesses us! God gave me this amazing baby boy and no matter how hard this time is it's all about him and what he needs!! Even if the doctors are right and he is as bad as they think he soo deserve to know the Love of a family and to experiece as much of life as he can! I am doubting this post is making since and I am not sure why I am writing other than it's been a hard day, while asleep last night the night nurse changed Jeremiah's gown and didn't keep his paci and paci holder! The very first one is now gone! I have cried my eyes out all day and so has Jeremiah because he became very attachd to it all this time docs won't let him eat a bottle! I have been more emotional today since that happened! I don't know why this happened to Jeremiah and why he has not been able to be at home and experience family, his swing, start all his therapies ect. But I know that God had mercy and saved his life! Every time I think my baby had 500 times the normal Procalcitonin of sepsis and people die with regular sepsis I am more amazed at the power of God!!!! The doctors have said it is a miracle he lived to get to 
America and that he lived through this battle! We are still in icu but he is doing amazing!! Please forgive any comfusion In this as I am exhausted! 

To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!

Jeremiah is doing amazing !!! He is now on room air!!! No mote oxygen needed!!! Such a miracle frogie boy!! Please keep the prayers coming that he does great on room air and keeps his vitals where they need to be and that sepsis continues to leave!! Watching for God to show off more!!!!

Sitting here rocking a miracle and standing in awe at the mercy and miraculous healing power of God!!!! Also thanking the Lord fir loving me so through His people on birthday!! And foe giving me the only present I wanted!! Jeremiah off the vent and me able to hold him!!!

Day 16 in PICU ( 19 in hosp)

So God gave me what I wanted for my birthday today' my baby is off the vent and I got to hold him though only briefly. He is back in the bed because he started screaming and they said he must not want to be held. Back in bed he is better but now I feel so sad that he doesn't want to be held and I worry bonding was destroyed but all that matters is he
Get better! So want to post pics!!! But can't on iPhone for some reason

Pray he passes the test and can stay off !! Can't hold him yet because just needs to breathe and do good for now . On 3 liters o2

Vent and chest tubes are out!! Now we wait and pray to see if he will do good!!!

Today! Day 15 of PICU and day 18 of hospital. Pray

Today is the day!!! day 15 in PICU and day 18 of hosp stay. They are gonna TRY mid morning to take him off the ventilator!!!! Please sto heaven that is little body is ready and it will work and he will do good!!!!!!! God is able!!!!