Not flesh of my flesh, nor bone of my bone; but, still miraculously, my own.
Never forget, for a single minute you didn't grow under my heart, but in it.

Tuesday, February 22, 2011

The gift of life

Well, Jeremiah is a bit better after a really hard day yesterday. He crashed several times while on the vent yestetday and had everyone Jumpin. The night was his best yet. He had a few episodes of desat on oxygen and a few coughing spells and need to suction but no crashes! Still on vent support. The big doc just came in and said during the night his breathing would slow waaaaay down and the vent had to do way more. They want him to breathe over the vent and he is some but not during night. Please keep praying he will get safe enough to get off the vent soon

Before I got that above posted he started up with some episodes today. They are not as severe but still has everyone jumping. I now know there is a pink button on the wall that makes All docs nurses RT etc run into the room. He seems a bit stronger to me and one coughing spell really looked like the gagging he does on formula. I am praying so hard they can get him off the vent and that he will be better an better!

Had a wonderful visit with sweet ladies from my cell group! 2 yesterday and one this morning and the childrens pastor has been by several times as have his home health nurse and his therapists. Just had an encouragement and message from God by way of a sweet friend. Yesterday during worship God gave her hubby a vision of Jeremiah and He drew it out. It is of Jeremiah in his hospital crib and angels all around him! I sioo needed to hear that reminder!! It brought tears to my eyes and as I think about it now I am bawling! I can't wait to see the drawing!! So made me feel God saying to me eyes of Faith girl not of flesh! The docs may not understand what is all going on but God does! And He is here!! God ia the giver of life and breath! He is the one who created the air! Life is such a gift and more precious than I think any of us realize! U am thanking God for every second of life for this baby and everyone in my life! I am praying that i can keep my eyes in HIM and Remember GOD IS ABLE!!!

To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!

Monday, February 21, 2011

7:47 am Monday February 21st

Please pray. Temp 104 axillary(underarm) Tough night breathing wise. Still on ventilator with pressure support with many many apnea episodes last night. Tryin to wean some sedation today to help breathing. But need it not to allow him to get too agitated either. Pray they can find cause of high temp and get under control quickly! Thanks everyone

To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!

Sunday, February 20, 2011

Jeremiah urgent

Jeremiah is having a hard time. They tried to take him off the vent this morning and he crashed :( heart rate oxygen sat breathing everything was nothing . He was totally blue. The moat frightening sight I have ever seen. They had to work on him and made me leave eventually while they did. I was crying and praying alone In the hall. They finally got him going again and he is on the ventilator again. We are keeping his ICU room very quiet and prayerful. Allowing him to rest and heal and helping him to do that! I can't tell you the fear in my heart and how the sight of him like that is etched into my mind. Please keep him in prayer. GOD IS ABLE. That is what I keep holding on to!

To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!

Saturday, February 19, 2011

Jeremiah surgery

Just letting y'all know Jeremiah had surgery yesterday and the huge adnoids are out as are the tonsils . They were blocking the airway big time. He had some issues in surgery with stopping breathing before surgery even started. And then another time as well. He had a very rough night last night but today has been better. He is on the ventilator and not thrilled about it. Please keep him in prayer!

Noah is doin well and makin big strides at bein an awesome big brother! More later. Miah needs me

To God be the glory, great things HE has done!!!!!!!! Sending this by the blessing of my phone!!!

Monday, February 14, 2011

Fear...Faith...Blessing

Fear..Faith...Blessing..  is sorta what all is goin on in my heart and mind lately.  Lots has been going on and is coming. 

Fear... well I have had some fear in me lately and more coming as friday approaches.  Life has been outright HARD lately.  We have had Jeremiah sick and in hospital, Noah very sick and not holding anything down, me sick on and off , Celeste is sick now and on Tuesday my mother scared the snot out of me by having a mini stroke.  We had to call the ambulance.  they got here and said her blood pressure at that point (45 minutes into it) was 190/120.  They believe it was higher when she was first having symptoms in her room that she was concerned about but waited over 30 minutes to come tell me.  at the time she came to me her speech was slightly slurred and out of place.  Rather than saying "I think i am having trouble talking"  she said something like " I trouble with my talk I think me" or something like that, words all in wrong places.  Was a VERY scary time.  She is doing fine.  They said it was a mini stroke, and it reveresed itself.  She came home from the hosptial a few days later afte rmany tests.  They feel this is a warning stroke for something bigger coming but at this point none of the tests really show them what is coming.  They put her on a blood thinner and are watching her cholesterol and blood pressure closely.  She will be needing me to take her to the doctors more frequently and will be seeing more different kinds of docs now.  FEAR was big during all that, and also when Noah was so sick. 

Another area of weird fear is my daughter has found a young man she is now officially dating.  He is a liscensed children's pastor in Assembly of God Church.  They both have similar callings on their lives and we can see where God can really use them as a couple. they and we and our pastor and the young man's mother all prayed for a month before they officially began dating.  Well the 5th marked the month and they are dating.  Now. Celeste was raised since age 5 for courtship but in this case she has chosen to not follow that path.  At the age of 22 I can not stop her and it is very upsetting to me in ways but my goal for it was to protect her and guard her heart so nothing including her heart and emotions are givin to a man that is not her hubby.  No baggage to carry into her marriage someday.  Well, the dating is with accountability because of his ministry and all but he did share with me that he would not go forward into a dating relationship with her if he did not beleive she was the woman God had to be his wife.  They do plan to take things slow (unlike her mama when she courted! LOL).  The Fear part comes with the leave and cleave that will be coming and to be honest in ways is already happening.  Her mind and heart think of nothing more than being with him, which is as it should be if this is her husband to be and all.  But for a mama's heart it is still scary.  I want nothing more than for my daughter to find the man of her dreams, get married have babies by birth and adoption and have an awesome ministry together.  BUT things will be different between me and my baby girl, and they already are and it is sad but at the same time I am excited and happy for her but FEAR of what life will be like in coming years is scary. 

Another FEAR thing is Friday.  Friday, February 18, 2011 Jeremiah will be having surgery at Suttons Children's Hosptial in Shreveport, LA.  FEAR is a a HUGE word in my heart right now.  I really wish I could run for the hills and avoid this whole thing.  BUT the doctors and my husband both tell me it is best for Jeremiah and it is goin to have to be done.  His adnoids are blocking his nasal passage and it is affecting his breathing and also causing ALOT of mucous to form which he is then choking and gagging on.  Leaving things as they are is dangerous.  They are doing everything is the best timing possible.  The reason for the date is because they (and us) want the same Intensivist that took care of him when he first came home to be over his care in the Intensive care after his surgery :)  Well, he was off service and comes back today.  So the surgery is planned for Friday.  He will see the ENT on Wednesday and make sure he is in the best possible shape for the surgery.  The plan is for a week in ICU after the surgery.  They are more concerned about how he will do recouperating than the actual surgery and also getting him back off the ventilator of course.  THIS is where the FAITH comes in.  I HAVE to have faith and hold onto God.  I want so bad for him to do soo much better than what they expect.  I pray he gets off the vent much easier than they think and it out of ICU earlier than expected.  But my biggest prayer is he have as painfree a time as possible with it and that he is strong enough to do so well.  I pray against complications of any kind.  The thought of goin back inot the ICU with my baby again sends me into shivering sobs.  The thought of seeing him on a vent and not being able to pick him up and comfort him hurts me to my very core.  I have to have FAITH that GOD will somehow use this to increase the glory!  That somehow someoone will see the hand of God that might not otherwise.  and I have to have FAITH that God is in control and will keep us safe!  AND I have to have FAITH that Noah will do fine through it all too.  ICU means periods where he can not be with me.  It means Bobby and Celeste on surgery day and then just bobby the rest of the time will be having to try and help Noah deal with the times he can't have mama.  And that I will have to at times let someone else be with Jeremaih and come out and spend time with Noah.  It is so hard to feel split in two as a mama. When I am with Jeremiah and tending him I will want to be comforting Noah and helping him not be so uspet and scared to be away from mama and when I am calming Noah and spending time with him I will want to be with Jeremiah and making sure every need is taken care of and that he hears my voice and knows I am there loving him and have not left him.  sigh  FAITH, I want to do better at it.  I NEED to do better.  I feel like in the past few months I have NOT been a good child of God at all, have not been a faithful women or a light for Christ.  I feel like I have been complaining too much and feeling overwhelmed.  I may feel that way but would have it no other way.  I LOVE my family and can't wait for God to grow it again in HIS time.  I get mad at myself when life seems hard and I feel overwhelmed because I feel like a failure and that other moms would do so much better at this.  I look at mentors of motherhood such at Michelle dugger, some above rubies moms, a friend with 10 kids, and I think WHY can't I be as faithful as them.  Why can't I keep it together, why can't I have the calm sweet dispostion.  what is wrong with me.  I know if I have FAITH that just maybe God will change me into a better mom, wife, friend, daughter, etc.  HE is the potter and I need to be moldable clay.    Below is part of the blessing.  This sunday in Children's church the teacher and children laid hands on Jeremiah and prayed for him for his upcoming surgery.  Even if you are not a person of faith, please watch the video.  It is such a sweet thing to behold and Jeremiah lifts his head up and turns toward the children, just like he is looking at them and knowing they are praying for him :)  We are so blessed to have this Church in our lives and the prayers.  I PRAY that nothing happens to change that blessing. 




Noah still is not willing to stay away from mama and is still having fits and different issues.  I have a luncheon meeting with the Nursery director and the teachers on thursday and I am very nervous about this meeting.  We so love this Church and really feel this is where we are suppose to be and I adore the children's program and worry they are tired of me going in with noah.  and even without noah needing me in order for Jeremiah to be a part I need to be there to care for him.  I just worry about this whole meeting and am prayerful I can express correctly the needs of my children.  It seems like NOBODY really understands Noah or even Jeremiah and his needs either.  They both have special needs, just of a different kind.  Seems so many think they know the perfect answer but dont take into affect so many things that make Noah , Noah.  Anyway, please just be praying this meeting goes well and the Blessing of the Church and children's program can continue as is.  My biggest fear is having to only take the boys to worship and them missing out on the wonderful time meant just for them. 

I feel on the verge of tears so much lately and I do NOT want to be that way.  It was spoken over me a long time ago that my name would be JOY!  I want to exude the JOY of the Lord, and not be bogged down in how I physically feel or the FEAR and lack of faith.  afterall fear is the absence of faith. 

thanks for letting me share to those who still read along.  It somehow helps, especially when some of you dear bloggy mama's comment with a pat on the back, word of encouragement or a prayer or soemthing.  Now for what yall really want :)  a few pics :) heehee
Noah showin off his color sheet.  This side was done in light orange you can barely see he colored on it.

Jeremiah's color sheet mama helped him do.  I put crayon in his hand and hold it and sometimes he will move on own and sometimes I have to do it.  He actuall help it for a bit on his own yesterday and I moved his elbow!

Getting instruments out for worship

Noah thrilled to have scissors and get to try and cut!

Praying before class

A smiley guy!

sittin in his tumble form chair that mama was soo excited to get for $50 including shipping.  They cost about $700 normally.

My favortie picture of Noah in I dont know when.  Getting ready to go out in the snow/ice we had.  He reminds me of another adoptive mama's oldest son so much especially in this picture.

hangin out at the hospital on daddy's birthday.

one of Noah's sweet sweet moments.  See his hand on Nanny's arm.  Worried about her while they were doing things to her :) He looks grown in that outfit.  He got choked and got sick on his clothes and sent daddy to the store to get a cheap shirt, he got one 2 sizes too big.  LOL

my brood :)

Noah nappin in daddy's recliner!  His menagerie grows constantly but ALWAYS has Buddy (the panda) elmo and George( a gorilla wiht a paci that was Celeste's when little

another shot of Miah in his chair.  He looks like he is about to get up out of there :)

Friday, February 4, 2011

SNOW SNOW SNOW SNOW!!! IN LOUISIANA

So we got SNOW!  Now, not sur eit is real snow, and some have said it was more ice or whatever but it LOOKED pretty and it was enough to play in!  We could not figure out actual snowballs or snowmen even though we tried several times throughout the day :)  lol It was too powdery the first time and too hard by the last time we went out.  Just did not work for us.  It never went above freezing so we MAY see it tomorow.  not sure yet.  Anyway here are some pics of our fun in the snow.  Not near enough pics cuz everyone wanted to play more than be the photographer :) lol


Jeremiah did go out but I did not leave him out for long.  I was worried about him being too cold, but then when I took him right inside the door so he could hear us and then sit with Nanny while we kept playin I felt soo guilty.  SOO hard to balance making sure he experiences ALL of life and protecting him at the same time.  IF I end up having Celeste home tomorow again to help (daddy has to go to work no matter what the roads do :( ) anyway I will try to take him out a little longer tomorow.  I did not let him touch the snow, though it was snowing so it touched him as it came down.  HE loves it outside and so was quite content.  Just renewed my desire for a big ole front porch and ramp :) 

Jei Jei loved it just as much as Panda Boy :) She tried to make a snow angel and the first try the snow was so hard that nothing happend at all, then they jumped up and down on it to loosen it all back up, then she did it and it sorta worked except you could see the mud below as the outline.  LOL



Mama and Daddy had a bit of fun too! Celeste had fun with her camera taking these then I had fun making the collage.  LOVE to do that kinda thing. 

My happy frogie boy this evening :)

this was Noah's VERY FIRST GLIMPSE of the snow this morning!

Here he is looking out at it and chompin at the bit to go outside :)

this was our attempt to make a snowman, was so difficult Celeste gave up and made a snow seal! LOL

Tuesday, February 1, 2011

Need to talk

I am bawling as I type.  Today MY dog Bella left this earth.  I am not handling it well.  Been a very emotional day.  Trying to be as normal as possible with Noah and all so we are watching Little House on the Prairie and it is the episode where there baby son dies.  NOT a good show for me to see.  My heart is breaking watching the grief and for some scary reason all I can think of is how would I survive if it was Jeremiah and then I remember that according to the Neuro it is going to be Jeremiah. :(  I soo want to hold on to faith and to beleive that He is going to outlive any expectations they have for him and for that matter us.  A parent is suppose to go before the children.  and I know GOD is bigger than prognosis, but for some reason today it is REALLY getting to me and this FEAR is creeping in big time and sadness.  Great sadness. and then fear of not being strong enough to survive loosing him and what will happen to the rest of the family and just crazy thoughts.  I dont want to go crazy, I dont want to loose my baby and I want to believe the Neuro is beyond wrong and there is nothing to say that he is right at this point.  Jeremiah is doing well, did much better with the mycoplasma pneumonia than they ever thought he would.   He has made it through things nobody would believe he would make it through.  SO WHY AM I FEELING LIKE THIS :(  UGGGH anyway just needed to get this out.  Some days it is so hard living with a death sentence for your baby hanging over your head.  BUT I HAVE TO SPEAK LIFE!  LIFE LIFE LIFE!

For those who don't remember.  Here is a picture of my Bella:

And here is a shot of my sweet boys!  Noah was using his play cell phone and trying to take a picture of him and Jeremiah! lol
THE WAIT FOR NOAH IS OVER!!!! November 3, 2007~September 8, 2008 First heard about Noah~Noah in our Arms!
AND NOW THE WAIT FOR JEREMIAH IS OVER TOO!!!
April 1, 2009~ June 7, 2010 First committed to Jeremiah~Jeremiah in our Arms!

The FIRST Picture we EVER saw!

The FIRST Picture we EVER saw!
Noah WesLee 5 months old

The First Picture we ever saw of:

The First Picture  we ever saw of:
Jeremiah Harold Sisemore ~1 year


Kisses in the Wind

KISSES IN THE WIND
I hold you in my heart and touch you in my dreams.
You are here each day with me, at least that's how it seems.

I know you wonder where we are... what's taking us so long.
But remember child, I love you so and God will keep you strong.

Now go outside and feel the breeze and let it touch your skin...Because tonight, just as always, I blow you kisses in the wind.

May God hold you in His hand until I can be with you.
I promise you, my darling, I'm doing all that I can do.

Very soon, you'll have a family for real, not just pretend.But for tonight, just as always, I blow you kisses in the wind.


May God wrap you in His arms and hold you very tight.
And let the angels bring the kisses that I sent to you each night.


When Love Takes You In!